The Penny Record (Bridge City, Tex.), Vol. 41, No. 7, Ed. 1 Wednesday, August 9, 2000 Page: 2 of 24
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The Record Newspapers- The Community Newspapers Of Orange County, Texas
Page 2A • The Record Newspapers • August 9, 2000
Hutras baby, family struggles in special need
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Wanted: Wizards, Wenches,
Wandering Minstrels
views.
The 2000 Texas Renaissance Festival dates are
Saturdays and Sundays, Sept. 30-Nov. 12.
Contact Orvis Melvin at 800-458-3435 for an
„ appointment or information.
Or visit the website, www.texrenfest.com, and
I click on "employment."
Orange County child
afflicted with
Wolf-Parkinson-White*
Syndrome; family appeals
for help
Orleck died when aerial bombs struck the ship he
commanded during the invasion of Italy in
September 1943.
Bob Orleck is expected to bring some items for
the proposed ship museum that the Turkish gov-
ernment donated to him when the Orleck was
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Vicki Parfait
For The Record
Chris Bean of Marine Fuelers is loaning a spud
barge, which will serve as a floating dock for the
Orleck.
Other companies are expected to loan other
equipment, including a 90-foot gangway to
stretch from the shore to the ship.
After the Orleck is secured at Ochiltree-Inman
Park, former crewmembers will be allowed to
tour the weather deck only, pending approval
from customs.
Depwe said that no one would be allowed
inside the ship until U.S. Customs gives clear-
ance, which will require the inspection of a
marine analyst.
Public tours of the Orleck will not be permitted
at this time.
The Orleck will remain docked at the park for
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Work weekends in another century. More than
1,500 jobs are available at the Texas Renaissance
Festival Job Faire, Aug. 12 or 13 in Plantersville.
In what King Henry VIII promises to be the
largest, most colorful and entertaining hiring three weeks, then moved to the Port of Orange s
! pier at the end of Pier Road. Depwe said the
this year's "Age of Discovery."
The Job Faire takes place Saturday and Sunday,
Aug. 12-13, 9 a.m.-6 p.m. at the new Odeon
Theater on the festival grounds 45 minutes north- company will pump out the water used as ballast
in the ship and haul the water to a disposal site.
Depwe said the group would then set-up a
Memorial and Heritage Foundation which is
bringing the ship back, wouldn't speculate on a
contingency plan should the ship not make it to
Orange on time.
"It'll be here," he said. "You have to think pos-
itively."
Also, he doesn't plan to cancel the ceremony if decommissioned,
it rains.
"Well just get wet, because we are going to
hook her up and go with it," he said.
The Orleck's arrival is the culmination of a
7,500 mile journey that began when the
Ukrainian tug Akhtair hooked up to the destroy-
er at the Turkish port of Izmir on June.
The Orleck served the United States during
World War II. Korea and Vietnam before the
Turkish Navy acquired it in 1982 and used it
another 15 years. Last year, the Turkish govern-
ment donated the Orleck to the foundation to use
as a museum.
Two Turkish officers. Rear Adm. Ugur Yigit
and Capt. Serdar Akinsel, are expected to take
part in Saturday's ceremony. Yigit was one of the Pilots will donate the pilot's fees,
commanding officers of the Orleck when it was
owned by Turkey and known as Yucetepe.
Akinsel is a Turkish Naval attach^ based in
Washington. D.C.
Among the other expected guests is Bob
Orleck, nephew of the ship's namesake, Lt.
Joseph Orleck. A U.S. Naval officer, Joseph
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USS Orleck arrives Friday
From Pago 1
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gery removed two-thirds or more of
his lower intestine. He swelled and
developed a distended bowel. He had
three large abscesses in his abdominal
cavity. Another ultrasound showed his
kidney swollen to the size of a base-
ball. Both kidneys were filled with
fluid, the ureters were obstructed and
couldn't drain.
The second major surgery found
three major abscesses that made his
intestines stick together. Aleksandr
ended up with six additional perfora-
tions and several inches of small intes-
tines had to be removed. He had two
ostomy surgeries and then, at three
months, another to attach the small and
large intestines. He had surgery
because his liver was failing. With
short gut syndrome, he had to struggle
to get enough nutrition. His list of
afflictions growing ever longer, most
recently little Aleksandr, now 10
months old, was diagnosed with cere-
bral palsy.
Completely allergic to cow protein,
he did have IV formulas that cost
$ 1,100 daily. Ostomy supplies, medi-
cines, needles, flushes and more add
up to an incredible price tag. Before
L. *
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A barbecue and dance is planned after the
Saturday ceremony at the VFW Hall on North
Highway 87. Tickets are $15 each and will be
available at the door, at the park and at the motels
where the ex-sailors will be staying. The Taco
Rey band is scheduled to play Big Band era
music for the dance.
The Orleck is expected to reach Sabine Pass
Friday morning, where a flotilla of ships will
meet it and follow it into Orange.
A pusher boat or tail tug will join the Ukrainian
towboat at the jetties to help tow the Orleck into
Orange. Also, Sabine Pilots will board the tugs to
guide them through the ship channel.
Depwe said his group is hoping the Sabine
ties major physical problems in all
parts of his body.
With their resources stretched and
near breaking, Aleksandr's parents are
appealing to the community for help.
"I work for a good company and
have good insurance, just nothing for
Aleksandr," Gus explained. "We pay
20 percent on everything that the sup-
plemental insurance pays, but we are
going to reach that million mark, and
20 percent is a lot. Most of his spe-
cialists are not in the insurance's net-
work, so we really get about 60 per-
cent coverage. I have had $35,000 the
first year alone out-of-pocket expens-
es, and I haven’t even begun on the
medical bills."
The Hutras’ have been advised to
institutionalize Aleksandr,
and the state would pay for
his care, Gus said. But with
the expenses, the state would
assume custody and the
power to make all decisions
regarding his care.
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This is our son," Gus
said. "We have no family
nearby to help, and friends
can only do so much. This is
just the beginning. We need
help."
An account has been set
up at Firestone Community
FCU, 2101 MacArthur
Drive, Orange, 77630, "The
Aleksandr Special Needs
Trust," No. 5015-15, for
those who wish to help.
"People in Orange County
have always been so open,
loving and helpful to those
in need," Gus said. "I have a
good job, but after just pay-
ing for the medical supplies
and food and things for
HHELm Aleksandr, I'm broke.
• Randee has to be here with
the babies. Just a babysitter
won't do for him."
The Hutras’ expressed appreciation
for anything, any contribution that
anyone might give.
"It is amazing what something like
this can do to your lives," Gus said.
"You think everything is going won-
derfully. and life is right where you
want it, but it can change ... in a heart-
beat."
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west of Houston, between Magnolia and
Plantersville on FM 1774. Applicants may
choose either Saturday or Sunday but should gangway for access to the Orleck so volunteers
arrive early and plan to stay all day for some inter- can begin scraping and painting the ship.
Depwe, who along with others has spent
months trying to get the Orleck home, counts the
ship's return among his life's highlights.
"The three most exciting things were when I
got married, when our children were bom and
then our grandchildren," he said. "Now I have a
fourth." y
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event of the year 2000, the Texas Renaissance pjer at the end of Pier Road. Depwe said the
Festival is looking to match open positions with foundation will pay the port $10 a month for the
enthusiastic, friendly job-seekers as it readies for docking space until either party terminates the
agreement.
Once at the port's pier, a Texas Natural
Resource Conservation Commission-approved
OS
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Gus and Randee Hutras were living
the American dream. Moving from
Ohio to Orange County, they bought a
"fixer-upper" for a fair price and set to
work on remodeling. His job as oper-
ations manager at Firestone provided
an excellent living, and their three
children were beautiful and healthy.
Even though they had no other family
in the area, they made good friends
and life was good. They were content.
Then they discovered they would
have a new addition to the family.
Their pregnancy went well until early
in the third trimester. Randee noticed
the baby wasn't moving much. She
was concerned. The next day, instead
of the strong kicks he had given
before, the baby "fluttered." Randee
became so stressed with worry that her
best friend, Tracy Peveto, R.N., took
her to the hospital to put her on a five-
minute monitor just to ease her mind.
But the monitor showed an extreme-
ly rapid heartbeat, a pulse of 300 bpm.
The ultrasound revealed severe fluid
buildup. The infant's physical profile
was disturbing. Local doctors ordered
an immediate Life Flight to Houston's
Hermann Hospital.
However, a storm blew up and
grounded the helicopter. After an
hours-long ambulance ride, mother
and child arrived at Hermann, where
they were rushed to the ER, then to
specialists in the Maternal-Fetal
department. Doctors interviewed
Randee and worked up another ultra-
sound bio-physical profile of the baby.
They measured the amount of fluid,
mass of the baby-who was not due for
three months-checked the fluid spaces
around the heart and performed other
tests.
On a scale of 0 to 4, the baby scored
0. The Hutras family knew only that
their baby was in jeopardy; he would
A-i Mu
Aleksandr left the hospital at seven
months old, his million-dollar lifetime
insurance payoff was exhausted. A
supplement Randee and Gus pur-
chased will soon be gone. Medicaid
and Social Security assistance avail-
able to the Hutras family while
Aleksandr was hospitalized ended
when he was released.
His medical needs are ongoing and
will continue as he grows. He still bat-
be delivered by C-section in 10 min- m
utes. |
The obstetrician explained to Gus
that the baby had "hydrops, sometimes
called hydropsy," meaning a massive
buildup of fluid throughout the baby's
body. The rapid heartbeat meant no
blood flow. On ultrasound, the heart
didn't beat-it quivered like Jell-O. i
The anxious father was told that his I
unborn child had no chance of sur-
vival. The doctor said the baby boy '
would be terribly swollen and blue,
They would take him from the room
immediately so Randee wouldn't see
him.
Through an open door, Gus watched
the delivery. Weighing only three-and-
a-half pounds, the little boy seemed
huge, his body distended by the fluid.
But Gus saw something else. The
baby was moving, gasping for air and
he was pink. The OB gave Gus the
"OK" sign and whisked the newborn to
the neo-natal ICU.
Aleksandr (with the Greek spelling)
was not OK. He looked like he had
been pumped full of air, Gus said. He J
was oxygenating well, but still having forated in two places. Emergency sur-
tachycardia. The cardiologist diag-
nosed WPW, Wolf-Parkinson-White
Syndrome. The heart has a nerve bun-
dle that wraps around the heart in a cir-
cle, signalling the four parts of the
heart when to contract. Aleksandr had
TWO of these "bundles of kent" that
forked to both sides of the heart, firing
both sides at once so the blood pumped
backward and forward. Though the
heart beat terribly fast, the blood was-
n't circulating as it should.
The medical team tried everything
from the least-packing his face in ice-
-to the most drastic-stopping his heart
in hopes that when it restarted it would
correct itself. Nothing worked.
Fed his mother's milk through a tube
in his nose, Aleksandr was off the res-
pirator in a week. His mother and
father got to hold and cuddle him.
A nurse, Ann Kubanda, who cared
for Aleksandr, noticed signs of NEC, a
condition where an air bubble forms in
premie intestines, perforating the
bowel. The doctors thought not, but
Kubanda persisted until they started
antibiotics, "just in case."
X-rays revealed the nurse's diagno-
sis was correct. Aleksandr's colon per-
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Aleksandr Hutras, above, only three
months old, following his third
major surgery, and right, as he is
today.
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The Penny Record (Bridge City, Tex.), Vol. 41, No. 7, Ed. 1 Wednesday, August 9, 2000, newspaper, August 9, 2000; Bridge City, Texas. (https://texashistory.unt.edu/ark:/67531/metapth1293779/m1/2/?q=Homecoming+queen+1966+North+Texas+State+University: accessed July 18, 2024), University of North Texas Libraries, The Portal to Texas History, https://texashistory.unt.edu; .